About
The International OCD Foundation (IOCDF) is a Boston-based nonprofit dedicated to serving people affected by obsessive compulsive disorder (OCD) and related disorders. Founded in 1986, it began as a small group seeking mutual support and has grown into the leading nonprofit authority on OCD and related disorders, with a presence across 33 U.S. states and global partnerships.
Mission
The IOCDF's mission is to ensure that no one affected by OCD and related disorders suffers alone. Its community aims to provide help, healing, and hope — connecting people with accurate information, effective treatment, and a supportive community.
What they do
- Educational resources and up-to-date information on OCD and related disorders
- Professional training programs and conferences for clinicians
- Research advancement through grant programs
- Community events, support groups, and OCD Walks
- Livestreams and webinars
- Specialized resources, including for perinatal OCD, faith and OCD, and related disorders
- A therapist finder and clinic directories to help people locate specialized treatment
- Advocacy initiatives
History
The organization was founded in 1986 as a small group seeking mutual support among people affected by OCD. It has since evolved into an international foundation serving individuals with OCD and related disorders, their families, and the professionals who treat them. In 2025 the IOCDF launched Vision 2030, its five-year strategic plan, and Olympic gymnast Aly Raisman is serving as IOCDF Ambassador for the May 2025 to June 2026 term.
Financials
According to its IRS Form 990 data on ProPublica Nonprofit Explorer, in fiscal year 2024 the International OCD Foundation reported total revenue of 5,542,785 dollars — 66 percent from contributions and 31.9 percent from program services — against total expenses of 5,669,470 dollars, with net assets of 5,473,599 dollars at year end. The IRS granted its 501(c)(3) tax exemption in February 1992, and it is classified under mental health and crisis intervention.
Governance
The foundation is governed by a board of directors, with several members serving without compensation, and is guided by a Scientific and Clinical Advisory Board as well as a Diversity, Equity, and Inclusion Action Council. Rebecca Deusser serves as Executive Director, per the organization's most recent Form 990 filing (2024).